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#autism

45 posts43 participants3 posts today

"You would be hard-pressed to design a mechanism more effective at screening out autistic people than a job interview....

You are actually being judged not so much on your job skills but on the neurotypical social skills you have struggled with your whole life, and which you probably have been bullied at school for lacking."

#neurodivergent #autism

inews.co.uk/opinion/government

The i Paper · The Government wishes you all a happy neurodiversity celebration week – now get a jobThe world of work doesn’t want autistic people

Seeing a lot of posts lately talking about parents not telling their kids about their #autism or #ADHD diagnosis. The thing is, it’s not only with #neurodivergency, the trend is much wider.

I went to rheumatologist recently because of joint pain. Mentioned that to my mom, and she’s like “Oh, you’ve been a frequent visitor of a rheumatologist when you were kid because of heart murmurs and some other things, until we moved and changed the clinic”.
I’m over forty. I have an adult kid who suffers joint pain. I have been diagnosed with valve insufficiency just a few years ago, and knowing that I had heart murmurs could have helped with my diagnosis.
Why am I only being told about these things now? How much more medical information I don’t have about myself?

I know, many people are opposed to the idea of some universal health info system because of privacy issues and the fear that the state or corporations being able to use it against them. But I feel that it’s incorrect approach.
We need to develop mechanisms against misuse of our data, but there should be some way for us ourselves to be able to access the info about our health.
It’s so fucked up that there are numerous people around us - parents, school personal, doctors, nurses - who have the info about us, about our mental and physical health, that we have no idea about, and that is left for their(!) judgment what to give us and what not.
It strikes me as absolutely absurd when I see doctors or some “patient’s rights groups” saying sone info should not be shown to people because they can “misinterpret” it. WTH? As long as I am legally considered mentally capable to take my own decisions: to vote, to manage my property, etc - I should be entitled to any info on me, and should be given indisputable right to make my own decisions based on that. No one should take decisions concerning my health on my regard.
I don’t understand why people in general are ok with that. It scares me actually to see how widely acceptable that is in the society.

@actuallyautistic

Much of the difficulty in realising and accepting that we are autistic much later in life comes, in part, from the fact that we have been exposed to so many ableist stereotypes of it through our lifetime. The rest from the reality that much of the information we may have, is either outdated, or such that we struggle to see ourselves in it. It means that we have to spend a considerable amount of effort both in digging out and dealing with our internalised ableism, a somewhat ongoing process for many of us, and also educating ourselves on the reality of what autism is.

Such education quickly reveals that what it mostly is, is a spectrum of difference. It really is true that no two of us are alike. It may only be in the difference in which something affects us, its intensity, or the degree to which it affects our ability to function or cope. Or it may be in the aspects that we experience that others don't and vice versa. We also have to realise that whilst autism is often described by the way that it manifests, in terms of the various traits associated with it. That doesn't mean that you have to manifest all those traits to be autistic. Nor does it mean that there is one and only one way that those traits can look. Each of us, in this, really are different.

To further muddy these waters. The older we are when we begin this process, the longer we've obviously lived. In other words, the longer we have lived with what being autistic meant for us. Not by name obviously, but in terms of the ways we've learnt, as often as not the hard way, what we can and can't do, how we struggle, when we don't, our strengths and our weaknesses. And we haven't just ignored this, as much as possible we've built our lives around it. Obviously not ideally, we didn't always have the knowledge to be able to set the right boundaries, or the paths we should, or shouldn't walk down, regardless of what others wanted from us or even how we thought we should be. But still, as much as we could, we walked a path that was a reaction to what we were. That meant that over time we could learn to hide and compensate, to try and take advantage of our strengths and fear our weaknesses, adjust and compensate. In fact to continually layer the products of false awareness and understandings, of guess work and trial and error, over our behaviours, like papering over a crack, until the original could hardly be seen any more and we could at least get by.

This is why it can be so difficult to realise that you are autistic and everything about it now. So much of what is described is the cause of our behaviour today, but not the behaviour itself. And seeing past that to the root of the behaviour and the way we are and that it can still be different from how others are, is the reason why it takes so long and why so much of it, is still an ongoing process.

#Autism
#ActuallyAutistic

Neurodivergent people have always been there (we just weren't 'looking' before)

theneuroscienceofeverydaylife.

The idea that the neurodiversity is a 'recent development' and hasn't been shaping all of human society forever is as wrong as it is unhelpful

My latest post explains

The Neuroscience of Everyday Life · Neurodivergent people have always been there (we just weren't 'looking' before)By Dean Burnett

Neurodivergent people have always been there (we just weren't 'looking' before)

theneuroscienceofeverydaylife.

The idea that the neurodiversity is a 'recent development' and hasn't been shaping all of human society forever is as wrong as it is unhelpful

My latest post explains

The Neuroscience of Everyday Life · Neurodivergent people have always been there (we just weren't 'looking' before)By Dean Burnett

Since I moved to a new instance, here's a little #introduction about me. My name is Purple, a #retrogaming nerd mostly into platformers, FPS games, and survival horror. I'm also nonbinary and on the #autism spectrum. In addition, I take interest in animation, mostly stuff geared towards adults.

As of now, my current media hyperfixations consist of:
Super Mario
Sonic the Hedgehog
DOOM
Half-Life
Silent Hill
Resident Evil
Life is Strange
Five Nights at Freddy's
South Park
Hazbin Hotel/Helluva Boss

Replied in thread

Our grey matter - and the sheer amount of it (energy-draining, esp when combined with the heavy skull it needs for protection) - grew that way to help us, as individuals living in human societies, a) detect deception, and b) deceive and outdo others. Of our own species.

Now, enter #autistics.

Even the name, #autism - it's about not being what's considered properly 'socialised'.

There is so much wrong with this statement by Health & Human Services (HHS) Secretary RFK Jr.

1) Autism isn’t a chronic disease. It isn’t even a disease.

2) Autism doesn’t lead to someone potentially developing fatal encephalitis (brain swelling) or pneumonia.

3) Autism doesn’t require urgent medical hospitalization (which measles can) & stress the healthcare system.

3) Autism doesn’t spread from person-to-person in the air.

/1